We're all about children
by Heather Murphy
MUSC Public Relations
The Catalyst
March 21, 2003
First in a three-part series on the MUSC Children's Hospital
A simple paradigm dictates that adults and children require different
medical treatment.
Recently, Child Magazine named MUSC Children's Hospital the 11th Best
Children's Hospital, of 160 nationwide. This means the Children's Hospital
was recognized for its dedication to interdisciplinary cooperation, sensitivity
to the developmental needs of children, and a child and family friendly
environment. MUSC Children's Hospital is a community hospital,
a tertiary hospital for children with complex, chronic or congenital conditions,
and a safety net for under or uninsured children. It's also a major teaching
facility, a research center, an ambulatory care provider, the center of
the Children's Heart Program of South Carolina, and the last hope for the
state's, and some of the nation's, hardest pediatric cases.
‘Awesome
Austin' Smith watches his heart rate screen during a stress test at his
checkup in March.
Austin Smith of Gaston, S.C., was one of those cases.
His mother, Julie Smith, remembers thinking a bug overtook Austin while
on a family skiing trip in Gatlinberg, Tenn. Usually an avid ski buff,
14 year-old Austin spent three days in a hotel room, at times vomiting
and suffering from a total lack of energy.
On Monday, Dec. 16, Julie and Austin's father, Dan, decided to take
him to see his family health care provider, Jeff Kerby.
Julie likens what happened next to a whirlwind of realizations, anxiety,
and terror.
Austin's blood pressure and EKG were abnormal, so Kerby sent Austin
to cardiologist Osborne Shuler, M.D., in Columbia, who then faxed his EKG
to Phil Saul, M.D., chief of pediatric cardiology and director of the Children's
Hospital.
"Dr. Shuler noted his irregular heartbeat and once we received the EKG,
we recognized this child needed to get here as soon as possible," Saul
said.
"As soon as Dr. Shuler told me that my son's problem was life-threatening,
I was in disbelief," Julie said. "I mean, I brought him in for a stomach
virus or a cold, not a heart problem. In the next few minutes we were loaded
onto the MUSC helicopter. It was crazy. I was trying to understand what
was happening to my child and also wondering what to do about my other
son Mason, the house, and the dog."
Julie's voice quivers as she describes Austin's seizure in the helicopter
and the moment her headset was turned off. "He was in cardiac arrest and
they didn't want me to hear them working on him," she said. Julie prayed
to make it to MUSC in time.
Upon arrival at the Children's Hospital, staff hurried Austin to the
Pediatric Cardiac Intensive Care Unit. "When I met Drs. Saul and McQuinn,
it was the beginning of having a truly incredible experience in the Children's
Hospital," Julie said.
After analyzing Austin's case and the arrival of family, Saul drew a
picture of Austin's heart for Julie, Dan, and Mason. The situation, grave
at best, called for the MUSC pastoral staff to help the family prepare
for the worst. Julie was touched by how the pastoral team cared for her
and the family. "For the next 12 to 15 hours, Austin was surrounded by
staff, the room seemed full at all times. To take over for his heart, they
hooked him up to a heart and lung machine called ECMO (Extracorporeal Membrane
Oxygenator) and put him into a drug-induced coma to stabilize his movement.
Those ECMO and PCICU nurses were so wonderful," Julie said.
As time drudged on, Julie and Dan were confronted with the possibility
of a heart transplant. But then Saul suggested a heart catheter procedure.
"Austin was diagnosed with an incessant chronic arrhythmia. We decided
to try the heart cath, but the trick was going to be moving him from the
PCICU to the Cath lab, as there's extreme danger involved in moving ECMO
patients," Saul said.
On Dec. 17, Austin's family decided to take a chance on the heart cath
procedure. The Meducare trauma team debated how to transfer Austin down
the numerous hallways and elevators to the cath lab. It took an hour just
to prepare Austin for the move. The family doesn't remember breathing that
night.
After the completed procedure, the stagnancy of waiting crept in as
Austin's physicians, surgeons, nurses, respiratory therapists, and others
anticipated whether his damaged heart would allow him to live and if he
had suffered any brain damage.
"They weaned him off ECMO on the 23rd and told us that it would be about
24 hours until we'd see anything. There was nothing else we could do. It's
hard to be so out of control, but I knew that Austin was receiving the
best care possible and we trusted the staff. I was overwhelmed by the compassion,
knowledge and incredible service we'd received up to that point," Julie
said.
Thirty minutes after ECMO was turned off, Austin began to ask for his
parents.
There wasn't a dry eye in the house, Julie said.
He began to ask more questions on Christmas Eve like what day it was
and who won the reality TV show "Survivor." McQuinn told Austin that he
was the survivor.
"What's so amazing about that kid was that as quick as he crashed, he
came back just as fast," she said. "Our experience at the Children's Hospital
was amazing. The staff was unbelievable and we absolutely fell in love
with Drs. McQuinn, Saul, Simsic, Bradley, the residents, the ECMO nurses
and the PCICU nurses."
Austin's
mom, Julie, and grandmother Mary Blackwell, watch intently as Austin undergoes
an echocardiogram, or ultrasound, of the heart.
Two months later, "Awesome Austin" is back in school despite tiring
easily. But all things considered, he has maintained a full recovery.
"If we hadn't been such a coordinated team within the hospital as well
as with other physicians throughout the state, Austin probably wouldn't
have made it," Saul said.
At the core of Austin's success story lies the Children's Heart Program
of South Carolina, a unique coalition of pediatric cardiologists, cardiac
surgeons, pediatric nurses, and ancillary staff who have bonded together
to provide the best possible pediatric care.
"The idea was to have the experts concentrated into one place to combine
expertise and provide better care. There are no published outcomes better
than the ones here. We have the best pediatric cardiac care available,"
Saul said.
The Children's Hospital consists of more than one department and its
successes, however.
Many children's hospitals boast specialists in pediatrics. They're called
pediatricians. MUSC surpasses those hospitals in physician and staff expertise
because in every subspecialty of pediatrics, like pediatric radiology or
endocrinology, board certified physicians care for the children who enter
the MUSC Children's Hospital. This means a patient and the patient's family
can rest assured that a physician seeing a child at MUSC has extensive
education and training in a particular subspecialty of pediatrics.
"It's not easy to quantify what makes us so special," said Lyndon Key,
chairman of Pediatrics. "It's not as much our physical facilities as it
is interdisciplinary resources derived from individuals who specialize
in children at every level of the Children's Hospital. In most large institutions
like ours, services for adults and pediatrics are often shared. Because
we don't have to do this, our pediatric services are very strong."
Key mentioned intellectual capital as another benefit special to MUSC.
By employing and recruiting board certified faculty who explore new therapies
at every level of medicine, MUSC Children's Hospital continues to maintain
its reputation as the best children's hospital in the Southeast.
But a successful children's hospital includes many ingredients, not
just brilliant and talented clinicians. According to Carol Dobos, Ph.D.,
R.N., children's services director, the attitude that "the patient is both
the patient and the family" contributes to patient and community satisfaction.
"This is truly a comprehensive children's hospital because not only
does every subspecialty have board-certified physicians, but we have incredibly
good outcomes. Those outcomes are the result of experts working together
and creating a synergy that results in clinical success," she said. "The
entire interdisciplinary team maintains excellent care of children from
pediatric nurses and respiratory therapists to pediatric pharmacists and
the Child Life staff."
A free standing facility, the Children's Hospital places 95 percent
of all pediatrics patients in private rooms, equipped with sleeping areas
for parents or guardians. All of the rooms include amenities like TV's
and VCR's and three multi-age playrooms, including the Atrium on the seventh
floor, provide a space to play, as kids like to do. The Children's Hospital
takes care of parents and guardians too, with 11 support groups and 24
hour visitation. Nurses to patient ratios are incredibly low, like in the
PICU where one nurse cares for every patient.
"The high-tech physical aspects of the Children's Hospital combine with
superior interdisciplinary care to create an environment, absent in community
a hospital, that shouts ‘We're all about children'," Key said.
"Being number 11 and the best in the Southeast means you can care for
every aspect of the child from medical to psychological and emotional pediatric
care," Saul said.
To the staff of MUSC:
This past Christmas our family spent our vacation with you. Going through
a traumatic experience is overwhelming in many ways. How do we say thank
you in a few words or let you know our appreciation for helping our son.
We remember so many of your names and faces, and the care you gave Austin,
both physically and emotionally.
As you healed his heart, you touched ours.
When you would call or come by and see him on your days off, we were
totally blown away.
You each do your job so well, with care and compassion. We couldn't
have asked for a better group of people. We believe that's one of many
miracles we witnessed during our ordeal. We will never forget last Christmas,
and the experience changed our lives forever. It was amazing to see the
goodness of so many.
Thank you from the bottom of our hearts and God bless!
Austin Smith's family
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